When we were back east, I was told to post something everyday. Even if it was just to say, “All is well!” Okay, so I let a few days go by, but I THINK we are all at the end of this round of colds. As one takes a turn for the better, another falls prey.
Erin has been cranky all week. With no other symptom I have been suspicious she was on the verge of a new swelling. She’s been crawling into bed with us in the middle of the night. When she comes home from school she quickly becomes agitated and only wants me to cuddle on the couch with her. Today she asked for me to take off her shirt and there I saw a new swelling on her back. I have no idea when she’ll be able to get her flu vaccine. She can’t have any vaccines during an active flare-up. I just hope we’re not in some vicious cycle of illness and flare-ups.
The kids are all excited that tomorrow is Halloween. Even Erin knows what trick-or-treating means. Today in preschool the kids dressed in their costumes and had a little Halloween party. She came home all excited because she wore her princess dress. I’ll be sure to share pictures of the kids in their costumes.
Other FOP news – In Sweden, Marie Hallbert works hard to advocate on behalf of her son, Hugo, and other FOP patients. She is Sweden’s point of contact for their FOP community. Marie has started lecturing about FOP. Her first round of lectures started this month. She recently posted a picture and blogged about her experience. The website name is FOP Sverige. I used Google’s free translator to convert the language to English. She also has updated photos of Hugo who is now 10 years old. There are pictures of his back that clearly show where the new FOP bone has grown in his back.
