Friends With FOP

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• Random Posts

  • Website updated
  • Fun, and not as fun
  • I need FOP fundraising ideas!
  • Another Swelling
  • Rare Disease Day 2010

• Top Posts

  • Jordyn's Walk - a benefit for a girl with FOP
  • Crazy FOP statistics
  • Rare diseases which you've never heard of (or maybe you have).
  • Miranda and Erin hang out
  • Swelling
  • FOP: did Shakespeare get it right?
  • Rare Disease Foundation gala
  • FOP - Then and Now
  • "There's no treatment for FOP, so what's the big deal about diagnosis?"