Thirteen year old Seanie Nammock from London (UK) is a vibrant young lady living with Fibrodysplasia Ossificians Progressiva (FOP). Here are a few articles about Seanie.
Telegraph.co.uk – Teenager Suffering from Rare Disease
2 Responses to “Seanie Nammock”
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Have you heard of a company called Mannatech please email me as I read your article and would love to share some info
Hello, Seanie. I’m Kristi, age 14. I have FOP too, diagnosed when nearly 11. I’d like to be friends with you and your Mom.
Just email me at tinkerbellpersonality90@hushmail.com okay. It’s a secure email, so when and if you email me, I can reply by going onto my other email address.
I’d like to contact you by myself, but I can’t. Internet don’t give free information like email addresses, of course.