Posted by Karen
I recently made the acquaintance (via Internet, but still) of a woman whose beautiful little girl, Addi, was recently diagnosed with Fibrodysplasia Ossificans Progressiva. While going through all the strong and difficult times that entails, my new friend, Shannon, also started a blog about her family’s journey with FOP. Recently, Shannon and her family had the chance to meet Dr. Kaplan, FOP doctor extraordinaire. Today I want to share with you Shannon’s blog about that meeting. Check it out at:
http://fopjourney.blogspot.com/2011_11_01_archive.html
I’m so glad to see that Shannon found the meeting helpful and inspiring. From my own perspective, one thing which is so great about Dr. Kaplan is that he has the power to make an FOP parent feel like SOMEBODY knows what’s going on, and that same somebody cares! I really feel that sense coming across in Shannon’s blog.
On an entirely separate note, more good news about FOP research – it seems that Harvard University (yes, Harvard! how great does that sound??) just got funding to start work on testing an FOP drug. Here’s the link to the story about it:
http://www.eurekalert.org/pub_releases/2011-11/nhgr-ntp111411.php
I figure, the more people doing FOP research, the better… It’s all good. 
Finally – just FYI, I will be taking a break from this blog for the next 3 weekends. There’s a major thing going on in my work which is going to occupy many, many hours of my time from now through mid-December (so SUCKS to have to work weekends, but ya gotta do what ya gotta do). I’ll return to my blogs December 18(ish). Bye for now, and for no particular reason at all, here’s a random picture of Miranda and her brother Owen which I recently took…
