Our year of FOP events

Posted by Karen - December 22nd, 2013

Posted by Karen

It’s the Sunday before Christmas.  As such, I’m all relaxed and just lovin’ the carols, the chocolates and most of all, my kids.  I’m far too mellow and blissed out to write a complex blog post.  And so, instead, here’s are some random pictures taken at Fibrodysplasia Ossificans Progressiva related events which we did this year…

In March, we went on Miranda’s Make-A-Wish trip to Florida and did ever so many fun and cool things.

Miranda (aka Thing 2) and Owen (aka Thing 1) with their namesakes at Miranda's Make A Wish trip in March 2013.

Miranda (aka Thing 2) and Owen (aka Thing 1) with their

namesakes at Universal’s Islands of Adventure.

 

Miranda and Owen at the playground in Give Kids the World Village (wish trip).

Miranda and Owen at the playground in Give Kids the World Village.

In May, we flew to London, Ontario for the Canadian FOP Network’s conference and family gathering.  At this event, we had a great photo op with Drs. Grunwald, Pignolo and Kaplan, all dedicated scientists devoted to helping people with FOP.  Miranda’s massaging Dr. K’s head!

CFOPN Mir and doctors edited 31-05-2013 9-22-44 AM

Later on in the year we did a fundraiser for FOP, where we all wore these spiffy T-shirts and walked and rode bikes to raise awareness of FOP and funds for research.

No kids in this photo! Here are my sister-in-law Erin, my sister Susan and me at our fundraising even in August.

No kids in this photo! Here are my sister-in-law Erin, my sister Susan and me.

 

Fun with Grandpa after the bike ride for a cure!

Fun with Grandpa afterwards. Miranda kept stealing Grandpa’s hat.  :-)

Finally, in November we did the SECOND trip to Florida this year for the International FOP Association’s 25th anniversary gathering.  What a great party that was…

Here we have Miranda, her pal Erin and their new friend, Joey Hollywood!  What a bunch of cuties.

Here we have Miranda, her pal Erin and their new friend, Joey Hollywood!  Total bunch of cuties.

Miranda and her doll, Alexi, at our fabulous hotel.

Miranda and her doll, Alexi, at our fabulous hotel.

Merry Christmas all!  From our family to yours, have a wonderful holiday.

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