Archive for August, 2015

More Friends with FOP

August 23rd, 2015

Read More

0

On Thursday of this past week, I had the great pleasure to meet up with my friend Steve, an adult who has fibrodysplasia ossificans progressiva, and his wife Nancy (OK, she doesn't have FOP, but is obviously a part of our community). They live in Texas, which is a very long way from here indeed, but were on summer vacation and happened to find themselves in Burnaby, BC, where I and my family live. Their vacation sounds pretty great - they were in the Vancouver area for a few days, and then were off to catch a passenger train through ...

Summer activities and FOP

August 16th, 2015

Read More

0

I understand that summer is over or almost over for kids in some places, and it's back to school... But not here in Burnaby, BC, nope. Our school board always starts school on the first Tuesday after Labour Day, which this year is a very late September 8. As such, my kids won't be returning to school for another 3 WEEKS! (Aside, and not really the point of this blog, but a 10 week long summer is too long, IMHO.) This means, of course, 3 more weeks of sorting out summer activities to keep 'em busy. For my 13 year old son, ...

Walk for FOP 2015

August 9th, 2015

Read More

0

Another year, another successful Walk for FOP... Woo hoo! I'm delighted to tell you that our event this year brought in over $24,000! This is an amazing number, and will probably yet climb a bit this week after some last-minute contributions which I understand are on the way. We gathered these funds for the benefit of the Canadian FOP Network, a registered charity in Canada which financially supports research into fibrodysplasia ossificans progressiva. Funny though, the whole thing started with a small glitch. See, we ordered these great T-shirts to wear on our Walk, and I think they looked great... However, when we ...