Archive for November, 2016

Life with FOP, age 11

November 13th, 2016

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When I first started doing this blog, my purpose was to talk about our everyday life in coping with fibrodysplasia ossificans progressiva (FOP). As time went by, though, my daughter got older and more concerned (understandably) about her privacy. As such, I turned more to talking about developments in the FOP community. I think however that every once in a while it can't hurt to talk about the challenges we face, especially if I'm careful to talk about things mainly from my perspective. And so, here are a bunch of the FOP related issues we've dealt with recently... The first thing ...