Archive for March, 2017

A board meeting, a research development, and the latest on the flare

March 5th, 2017

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Sometimes long periods go by, and it seems like nothing much happens concerning my daughter Miranda's fibrodysplasia ossificans progressiva (FOP). This is not one of those times... I feel like I've been focusing a lot on FOP in the past month. First, in mid-February, I flew out to Florida to attend the annual "in person" board meeting of the International FOP Association (IFOPA). From where I live in Vancouver, Canada, that's a SUUUUPER long way to travel for a short time... But it's only once a year, and it's extremely important, so it's worthwhile. Anyway, out I went on February 9, ...