Archive for April, 2018

The saga of the vehicle

April 7th, 2018

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We're in the process of getting our first ever wheelchair-accessible vehicle. As with so much else concerning our daughter's fibrodysplasia ossificans progressiva (FOP), it's been a long drawn out process... It all started last summer when Miranda, then age 12, had a major FOP flare in her left leg. Prior to that point, we had known that a wheelchair-accessible vehicle was in our future, but it was kind of hazy, far off in the distance. And then, when Miranda's left hip and knee became entirely fused in 2017, it suddenly became much, MUCH harder to get our daughter in and out ...