Archive for February, 2019

The best night of her life

February 24th, 2019

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There are many things a person who has fibrodysplasia ossificans progressiva can do for recreation. My daughter Miranda, age 14, especially enjoys reading. Yes, she's glued to her phone like any other teenager, but she'll happily put the phone down long enough to get deeply into a book. Further, when she finds a book she especially likes, she uses her allowance money to buy her own copy. She has a bookshelf in her bedroom containing all her much-loved books, and every so often moves the books around according to some scheme of which only she seems to be aware... As part ...